The Family Gene: A Mission to Turn My Deadly Inheritance into a Hopeful Future B
When Joselin Linder was in her twenties her legs suddenly started to swell. After years of misdiagnoses, doctors discovered a deadly blockage in her liver. Struggling to find an explanation for her unusual condition, Joselin compared the medical chart of her fatherwho had died from a mysterious disease, ten years priorwith that of an uncle who had died under similarly strange circumstances. Delving further into the past, she discovered that her great-grandmother had displayed symptoms similar to hers before her death. Clearly, this was more than a fluke. Setting out to build a more complete picture of the illness that haunted her family, Joselin approached Dr. Christine Seidman, the head of a group of world-class genetic researchers at Harvard Medical School, for help. Dr. Seidman had been working on her familys case for twenty years and had finally confirmed that fourteen of Joselins relatives carried something called a private mutationmeaning that they were the first known people to experience the baffling symptoms of a brand new genetic mutation. Here, Joselin tells the story of their gene: the lives it claimed and the future of genomic medicine with the potential to save those that remain. A compelling chronicle of survival and perseverance, The Family Gene is an important story of a young woman reckoning with her fathers death, her own mortality and her ethical obligations to herself and those closest to her. Linder is a writer living in Brooklyn. She is a regular contibuter to the New York Post and Morning Edition, among other media outlets. Books will be available for sale and signing at the event.